Dave Farber
2018-07-16 04:29:06 UTC
Date: July 16, 2018 at 13:00:18 GMT+9
Subject: Re: [IP] HHS Plans to Delete 20 Years of Critical Medical Guidelines Next Week
Hi Dave,
For IP if you wish.
Is the title of the article misleadingly alarmist or are they literally looking to actually "delete" data? I get that it might go "offline", but why would need to "delete" anything? Can't we just keep-around all the data until such time we might be able to bring it back online?
- operational cost of editorial "gate-keeping" for the addition of new guidelines, to keep-away financially-motivated guidelines
- operational cost of running the site itself ... I imagine servers ... bandwidth ... IT costs ...
"Nix estimates that the site would cost a âfew hundred thousandâ dollars per year to maintain even as a static archive."
A static archive would be a decent start, but I'd hate to lose the ability to add new knowledge to the base. Speaking of knowledge ... could Google be potentially be a logical fit to support this effort? It seems well-aligned with many initiatives they've undertaken to promote the sharing of information in the World.
1) Keep the site online, at least as an archive, and I think that any tech giant should be able to facilitate this.
2) Find ways to fund its on-going editorial operations, while finding ways to ensure that they remain as unbiased as possible, especially guarding against financial & political motivations.
-chris
--
Chris Holland
http://www.linkedin.com/in/chrisholland
310-500-7598
This message was sent to the list address and trashed, but can be found online.
-------------------------------------------Subject: Re: [IP] HHS Plans to Delete 20 Years of Critical Medical Guidelines Next Week
Hi Dave,
For IP if you wish.
Is the title of the article misleadingly alarmist or are they literally looking to actually "delete" data? I get that it might go "offline", but why would need to "delete" anything? Can't we just keep-around all the data until such time we might be able to bring it back online?
- operational cost of editorial "gate-keeping" for the addition of new guidelines, to keep-away financially-motivated guidelines
- operational cost of running the site itself ... I imagine servers ... bandwidth ... IT costs ...
"Nix estimates that the site would cost a âfew hundred thousandâ dollars per year to maintain even as a static archive."
A static archive would be a decent start, but I'd hate to lose the ability to add new knowledge to the base. Speaking of knowledge ... could Google be potentially be a logical fit to support this effort? It seems well-aligned with many initiatives they've undertaken to promote the sharing of information in the World.
1) Keep the site online, at least as an archive, and I think that any tech giant should be able to facilitate this.
2) Find ways to fund its on-going editorial operations, while finding ways to ensure that they remain as unbiased as possible, especially guarding against financial & political motivations.
-chris
Date: July 16, 2018 at 11:24:18 GMT+9
Subject: HHS Plans to Delete 20 Years of Critical Medical Guidelines Next Week
HHS Plans to Delete 20 Years of Critical Medical Guidelines Next Week
Experts say the database of carefully curated medical guidelines is one of a kind, used constantly by medical professionals, and on July 16 will âgo darkâ due to budget cuts.
Jon Campbell
07.12.18 5:11 AM ET
The Trump Administration is planning to eliminate a vast trove of medical guidelines that for nearly 20 years has been a critical resource for doctors, researchers and others in the medical community.
Maintained by the Agency for Healthcare Research and Quality [AHRQ], part of the Department of Health and Human Services, the database is known as the National Guideline Clearinghouse [NGC], and itâs scheduled to âgo dark,â in the words of an official there, on July 16.
Medical guidelines like those compiled by AHRQ arenât something laypeople spend much time thinking about, but experts like Valerie King, a professor in the Department of Family Medicine and Director of Research at the Center for Evidence-based Policy at Oregon Health & Science University, said the NGC is perhaps the most important repository of evidence-based research available.
âGuideline.gov was our go-to source, and there is nothing else like it in the world,â King said, referring to the URL at which the database is hosted, which the agency says receives about 200,000 visitors per month. âIt is a singular resource,â King added.
Medical guidelines are best thought of as cheatsheets for the medical field, compiling the latest research in an easy-to use format. When doctors want to know when they should start insulin treatments, or how best to manage an HIV patient in unstable housing â even something as mundane as when to start an older patient on a vitamin D supplement â they look for the relevant guidelines. The documents are published by a myriad of professional and other organizations, and NGC has long been considered among the most comprehensive and reliable repositories in the world.
AHRQ said itâs looking for a partner that can carry on the work of NGC, but that effort hasnât panned out yet.
âAHRQ agrees that guidelines play an important role in clinical decision making, but hard decisions had to be made about how to use the resources at our disposal,â said AHRQ spokesperson Alison Hunt in an email. The operating budget for the NGC last year was $1.2 million, Hunt said, and reductions in funding forced the agencyâs hand.
< - >
https://www.thedailybeast.com/hhs-plans-to-delete-20-years-of-critical-medical-guidelines-next-week
Subject: HHS Plans to Delete 20 Years of Critical Medical Guidelines Next Week
HHS Plans to Delete 20 Years of Critical Medical Guidelines Next Week
Experts say the database of carefully curated medical guidelines is one of a kind, used constantly by medical professionals, and on July 16 will âgo darkâ due to budget cuts.
Jon Campbell
07.12.18 5:11 AM ET
The Trump Administration is planning to eliminate a vast trove of medical guidelines that for nearly 20 years has been a critical resource for doctors, researchers and others in the medical community.
Maintained by the Agency for Healthcare Research and Quality [AHRQ], part of the Department of Health and Human Services, the database is known as the National Guideline Clearinghouse [NGC], and itâs scheduled to âgo dark,â in the words of an official there, on July 16.
Medical guidelines like those compiled by AHRQ arenât something laypeople spend much time thinking about, but experts like Valerie King, a professor in the Department of Family Medicine and Director of Research at the Center for Evidence-based Policy at Oregon Health & Science University, said the NGC is perhaps the most important repository of evidence-based research available.
âGuideline.gov was our go-to source, and there is nothing else like it in the world,â King said, referring to the URL at which the database is hosted, which the agency says receives about 200,000 visitors per month. âIt is a singular resource,â King added.
Medical guidelines are best thought of as cheatsheets for the medical field, compiling the latest research in an easy-to use format. When doctors want to know when they should start insulin treatments, or how best to manage an HIV patient in unstable housing â even something as mundane as when to start an older patient on a vitamin D supplement â they look for the relevant guidelines. The documents are published by a myriad of professional and other organizations, and NGC has long been considered among the most comprehensive and reliable repositories in the world.
AHRQ said itâs looking for a partner that can carry on the work of NGC, but that effort hasnât panned out yet.
âAHRQ agrees that guidelines play an important role in clinical decision making, but hard decisions had to be made about how to use the resources at our disposal,â said AHRQ spokesperson Alison Hunt in an email. The operating budget for the NGC last year was $1.2 million, Hunt said, and reductions in funding forced the agencyâs hand.
< - >
https://www.thedailybeast.com/hhs-plans-to-delete-20-years-of-critical-medical-guidelines-next-week
Chris Holland
http://www.linkedin.com/in/chrisholland
310-500-7598
This message was sent to the list address and trashed, but can be found online.
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